Sixteen year old Jarrum lives with spastic paraplegia, a hereditary condition which causes progressive degeneration. Five years ago he had much more movement and could crawl – he now has no movement in his lower limbs and his speech has been seriously affected, making communication difficult.
Jarrum lives with his Aunty Sharon, who says that he a wonderful boy.
“Never complains, always a smile. Everyone falls in love with Jarrum. If there were more people like him in the world, there’d be no war, only peace.”
Jarrum and Sharon came to Zest Care after being dissatisfied with the support they were receiving from a previous NDIS provider.
They started working with Zest Care Support Coordinator Mel, who Sharon says has been “amazing. Really organised and efficient. She has just got things done.”
One of these things is a special new wheelchair for Jarrum, which is arriving this week.
“Jarrum also has bad scoliosis – curvature of the spine. So it means that normal wheelchairs cut into his legs. We’ve been trying to get a specially designed one for ages – so it is very exciting that it is arriving this week!”
We love being able to help NDIS participants like Jarrum improve their lives through coordinating their Supports. We look forward to more good news stories in 2018!